Sleeping

Jon-Jon was watching me while I made dinner tonight. I looked at him after a few minutes of quiet, and this is what I saw. So sweet! Off to put Tay to bed now; we cleaned out the garage all day today, and I'm ready for the day to be done!

Heart Babies

It is a small world. My husband's cousin just a had a baby Thursday in St George (Utah). Friday, the pediatrician heard a heart murmur. Ordered more testing, and ultimately they lifeflighted their little one up to Primary Children's in Salt Lake City. He has Totally Anamolous Pulmonary Venous Return. The artery returning from the lungs to the heart is connected on the wrong side of the heart. He will have surgery Tuesday to repair it. We went to see them Saturday night and took them dinner. Mom and Dad are doing well, but they are heading into the worst of it soon. Please pray for baby Jacob.

Oxygen

Yes, that's right. My dear friend Oxygen has returned.




And here are her two buddies. We don't have room for them, so they'll have to sleep on the floor.

Asher's oxygen saturation was borderline at hos cardiology appointment last week (76%). So Dr. P said to keep an eye on him, it may just be a fluke. (Asher has beautiful skin coloring due to his Mediterranean heritage, which beautifully masks some of his blue-ness). A week later, at his Pediatrician's appointment, his Sat's hovered between 70-75%, sometimes dipping as low as 62% (yikes!). So, oxygen has returned. Dr. P says that this is to be expected. Asher is growing very well (14 lbs at 4 months, yay!), and his heart is having a hard time keeping up with the demand being placed on it. It is becoming more apparent that he really does need this surgery in October. He has been so healthy up until this point. Even though we knew surgery was coming, I think we were living in a fairytale world over the Summer. "Oh, Asher's great! His heart is doing fine. Yeah, he needs surgery, but you wouldn't know it!" Now his oxygen tank is going to be a big glaring signal that something isn't right.

But I don't have the heart to wake him up right now and put it on him- I'll let him sleep a little longer.

Jonathan's 1st Day of Pre-School!

Okay, technically Tuesday was the first day. But I didn't like Tuesday's pics, so I had a do-over today. Jon-Jon goes to Busy Bugs pre-school with his little buddy Cameron, and he loves it! How adorable is his little tie shirt? I saw a pre-printed one online, and decided I could make it. I appliqued and then hand embroidered the tie on. Love it! Tay wants one with a bow on it.

My Day

Woke up at 6:30 (whatever happened to the days of sleeping until noon?). Fed and changed Asher. Jon woke up while I was feeding Asher, so I got him a drink and turned on cartoons (so long DVR'd Antiques Roadshow). Attempted waking up Taylor for school. Put Asher back to bed. Climbed back in bed to cuddle with hubby. 10 minutes later, woke up Taylor again. Got her dressed, and walked to school. Came home, ironed Adam's shirt, made him breakfast, sent him to work. Packed up the van to work on our apartment. Dropped the boys off at my sister's (thanks Les!). Sanded and painted a stair railing (with a trip to home depot in between). Picked up Taylor. Picked up boys. Took Taylor to dance class. Took pictures of a house for work. Picked up Taylor. Showed the apartment to a prospective tenant. Came home. Did homework with Tay. Changed a diaper, put dinner in the oven, and now I'm off to feed a baby! Whew!

Utah State Fair!

We played at the Fair yesterday and had a blast. The kids loved all the animals! Taylor had to wear her galoshes; "I don't want to get poo on my shoes, mom!". Later, when Jon stepped in some cow poo, Taylor said, "See mom, good thing I wore my boots!"

Surgery!!

Asher has a surgery date. October 13th, at the Lucille Packard Children's Hosptal in Palo Alto, California. I'll be leaving with him on October 7th; we'll either be staying at the Ronald McDonald House or with a friend of my Sister-in-law. Recovery should take 2 weeks in the hospital. This surgery is a big deal- it's called a complete unifocalization. Our Dr., Dr. Hanley, is the best in the world at this. It will take 10-12 hours. Yikes! Our cardioligist says his first surgery is like a little league game, and this is the World Series. It will be much harder to send him in for surgery this time- I didn't even cry last time, and I've already shed multiple tears over this. Ash is just so cute and fun now, he rolls over, coo's and babbles, smiles like crazy. It will be so hard to see him post op with all the tubes, machines, etc. But I know it is for the best, I know he needs it, and he is going to get the best care possible. Doesn't make it any easier, though.

On a related subject, since surgery is in October, our insurance starts all over again. What that means is we will have to pay our extremely high deductible all over again. Finances have been very tight, and we are still paying for his first surgery. Soo- If anyone would like to help out at all, we have created an account at America First Credit Union for Asher; it's the Asher James Charitable Account. Any help would be much appreciated.