Asher was relatively stable throughout the night. He still has the "JET" syndrome, where his heart is beating irregularly, but it is more stable than yesterday. Currently, his heart rate is about 115, and his bp is somewhere around 70. The Dr's did rounds a little while ago, and they are positive about his progress, If we can have 24 hours of a stable heart rate and blood pressure, they will start weaning him from sedation and the ventilator. Medications he is currently on: Digoxin, Milrinone, Calcium Chloride, Fentanyl, DEX, and hydrocortisone. They stopped his Epinephrine and Dopamine, and have lowered his dosage on DEX and Calcium Chloride. He still has the ventilator, is sedated, and has 3 drainage tubes in his chest and 1 in his abdomen. But things are looking up from yesterday.
Still no room at Ronald McDonald, and I am so sad that Adam is leaving tomorrow. It will be much more lonely here at the hospital. I'm glad we are staying with a family, it's nice coming home to a full house and cute kids excited to see me! And my lucky cute kids get to see their Daddy tomorrow night; Taylor has been counting down the days ever since we left. I will update again if we find out anythinig else.
Hang in there. We are praying for you all!!
ReplyDeleteI finally got the chance to read your blog from start to finish. What an amazing journey you guys are going through. On Sunday, there wasn't one prayer I heard that didn't have a plea for Asher and your family. We love you guys and are thinking of you constantly. We can't wait to see your smiling faces again!
ReplyDeleteLove, The Miles Family
Thanks for updating us. I know there are many prayers being offered for your family back at the home ward. What a blessing of great people and their support in California. Hang in there.
ReplyDelete